If you are chronically ill, building a flare up bag can make everyday life a lot easier. Here is a simple step by step guide to create your own. 1. Choose your bag Pick a toiletries bag that fits inside your usual handbag or mobility aid. You want something you can swap into different bags easily. 2. Add your medications Include your emergency meds & anything you need during the day. You can also add general pain relief or other basics that might help friends or family too. Always follow the gui
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If you are chronically ill, building a flare up bag can make everyday lif…
36.3K views3 months ago
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Come and pace the day with me using @visible.health When you have a chronic illness pacing is super important but it’s also really difficult but using the Visible app & armband has really helped me pay more attention to my body & made it easier to manage my energy levels. We make so many small decisions everyday that can affect how we feel so I want to know what small pacing decision could you add into your day to make a difference to you? Let me know in the comments. I habit stack my morning st
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Come and pace the day with me using @visible.health When you h…
352.4K viewsApr 8, 2025
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It's #InvisibleDisabilitiesWeek & just because your disability is invisible doesn’t mean it should be ignored. Here are a few invisible illness hacks that can make daily life a little easier: Communication cards – Perfect if explaining your condition takes too much energy. I love ones from @stickmancomms for chronic illness and @iinsidemyhead_ for neurodivergent needs. Toilet card RADAR key – For those “need to go now” moments. The RADAR key unlocks accessible toilets across the UK, and the card
It's #InvisibleDisabilitiesWeek & just because your disability is invisibl…
22.1K views6 months ago
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ad Living with a chronic illness means there’s so much to plan for… but have you planned for the things you can’t control, like a power cut? Here are 5 reasons I’ve signed up for @SSENCommunity 's free Priority Services, and why you should too: 1. Extra support if you rely on medical equipment or mobility aids that need charging. 2. Advance warnings if bad weather or planned work could affect your power. 3. A personalised plan so you know what to do if the power goes off. 4. Peace of mind knowin
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ad Living with a chronic illness means there’s so much to plan for…
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5 things I’ve learned from living with a chronic illness (that everyone should know) 1. Rest is productive. You don’t have to earn it. And pushing through everything isn’t a badge of honour. 2. Energy is a limited resource. Pacing isn’t just for disabled people, everyone benefits from knowing their limits & putting boundaries in place. 3. You never know what someone’s carrying. Not all symptoms are visible, and assumptions help no one. 4. Support doesn’t always mean fixing things. Sometimes it j
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5 things I’ve learned from living with a chronic illness (that everyone sh…
35.4K views9 months ago
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Please don't tell chronically ill or terminally ill people to get well soon! We know you mean well and have good intentions but when you know we at chronically ill it can be really frustrating especially when it's something you hear all the time. It either shows that you don't really understand that we are ill all the time and only acknowledge it when we mention a symptom or that you are minimising our illness by thinking it will improve quickly and simply which isn't the case. Feel better soon
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Please don't tell chronically ill or terminally ill people to get well so…
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People often imagine chronic illness rest as cosy, calm or optional. But if you have ever had a bad cold or flu, you know that kind of rest is not relaxing. It is what your body forces you to do when you feel awful. We aren't lazy or taking time out to catch up on our favourite shows, in fact it can be hard to focus on anything else at all. Forced rest is not fun, restorative or a break and more people need to understand that. For many disabled and chronically ill people, that is the baseline. O
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People often imagine chronic illness rest as cosy, calm or optional. Bu…
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